To educate and inform the general public about Duchenne and other forms of neuromuscular disorders. Our aim is to showcase my son Jahan's, trials and triumphs, and first-hand experiences living with Duchenne. We hope to provide encouragement and hope to other parents of children with Duchenne. We invite you to join our mission.
Duchenne Muscular Dystrophy is a genetic disorder, affecting approximately 1 in every 3,500 male births. Duchenne results in progressive loss of strength, caused by a mutation in the gene that encodes for "dystrophin". Duchenne can affect anyone, from any race or culture. Although there are medical treatments that slow its progression, there is currently no cure for the progressive disorder.
What You Can Do
Spread the Word
Knowledge is power; and educating others about Muscular Dystrophy, is the first step towards raising awareness.
Tell your friends, family, co-workers, and anyone you know may about MD. The more people that know, the better.
Use social media, like Facebook & Twitter, to inform the general public. Every share and RT helps!
Volunteer with Muscular Dystrophy Canada, to help raise awareness and much needed funds for a cure and assistive devices.
Fundraise to help Muscular Dystrophy Canada (MDC) provide equipment for over 50,000 Canadians living with MD.
Join the Walk4MD
Join MDC's signature event, the #Walk4MD, which aims to raise awareness and funds for thousands across Canada.
Join Jahan at the annual Peel Walk for Muscular Dystrophy. Every year in June, we bring together an excited group of people--friends, family, neighbors and many more, and raise funds for Musclar Dystrophy Canada's equipment and research iniatives. We invite you to join Team J-Run in making muscles move!
Our team at Jworld.ca always has a wide variety of family friendly events, such as socials and fundraising dinners. Our events aim to raise awareness and funds for Duchenne and other types of neuromuscular disorders.